Audrey's timeline

I had to get this together for a hearing loss advocacy group that's helping me fight to have speech therapy added for Audrey -- it was declined due to her age and because she hasn't been diagnosed with a delay -- so I thought I'd post it here. A little keepsake, if you will. Maybe another overwhelmed mom with a newborn who has just been diagnosed with hearing loss will stumble across this via Google and it'll help somehow ...

This timeline doesn't include every single one of her audiology appointments, and I don't have our meetings with the parent advisor from the advocacy group listed, either. And I wonder why I've felt so busy.

12/7/2009 – Audrey born

12/9/2009 – told upon leaving hospital that she failed her hearing screening twice (didn’t know about first test); were given pamphlet for First Steps

12/17/2009 – First Steps intake appointment

1/8/2010 – 1 month old; ABR at St. Vincent

1/13/2010 – ENT appointment

1/20/2010 – CT scan (advised by audiologist and ENT) at St. Vincent under general anesthesia

1/29/2010 – First Steps evaluation

2/2/2010 – pediatric opthalmologist appointment

2/11/2010 – First Steps IFSP meeting

2/17/2010 – hearing aid evaluation/fitting appointment with audiologist

3/4/2010 – first meeting with parent advisor

3/11/2010 – pick up hearing aid (just a few days past 3-month birthday)

3/18/2010 – parent advisor meeting

3/25/2010 – audiologist

4/8/2010 – another audiologist appointment

4/8/2010 – parent advisor meeting

4/22/2010 – parent advisor meeting

4/29/2010 – audiologist … again!

5/3/2010 – decide parent advisor isn’t good fit due to insistence upon heavy sign language use; call First Steps to terminate advisor. Request new parent advisor and to add speech services to IFSP at that time

5/13/2010 – you guessed it: audiologist

6/9/2010 – 6-month audiology booth test

6/29/2010 – receive paperwork to add new parent advisor to IFSP

6/30/2010 – request for speech services declined